weekend pictures

Here's some pics from our hope kids birthday bash on Saturday. They had skating, bounce house's, and this cool room called the blast zone. It has foam balls and you just run around shooting them at people. The boys had a blast.

Jaxson just chilled in his stroller watching his brothers. Unfortunately the camera died right before we did the cake, so we don't have pics of that.

Even with the snow, we made it on our date. Jax played with auntie Boo, and the other boys were with grandma. We went to dinner and to a really dumb movie. Everything was sold out so we saw The Fourth Kind. Its supposed to be some true story about alien abductions and supposidly has real footage. LAME movie, don't go see it.

But we had a great time and thats all that matters.

The new snowy view from our house.

Sunday I trimmed up Jax hair, his fohawk was starting to fall because it was too long. I asked daddy to help me and of course he grabs the camera instead.

Before

After.

You can see how big his face still is. I have emailed his hematologist and he still thinks Boston is a good idea. We've solved the symptoms by putting the trach in. But its obvious by the puffiness that he still doesn't have adequate blood flow in his upper body. We are going to send the MRI he had a couple of months ago to Boston because its a great picture of his veins. We want to wait a few months because he's been through a lot lately, and we want him to build up his strength before we embark on another medical adventure.