Not much going on here this weekend. Yesterday Carter had his flag football game, and me and Ray went out and bought us an eliptical. Yes, by next summer we hope to be bikini skinny (well, maybe not bikini, but you know what I mean) Today we took the boys to see Toy Story/Toy Story 2 in 3D. I'll take any opportunity to see a Disney movie on the big screen again. We wanted to go to the pumpkin patch and let the boys pick pumpkins, but like everything else in Utah, the pumpkin patch is closed on Sundays.On Friday I realized that we still have 3 weeks before Jaxson's trach surgery. So I called ENT to see if there was any way they could bump someone else so Jax can go sooner. I hope to hear tomorrow if that will happen. It shouldn't be to hard. The majority of things ENT does is tonsils, ear tubes, easy stuff that can be put off for a couple of weeks. Still just trying to prepare. Finding the perfect bed if Jax ends up in our room. I need to find a portable oximeter. The one we have is the huge box that has a battery life of like 2 hours. Until I'm comfortable that Jax doesn't desat with the trach and can handle his secretions, I want an oximeter that is easy to take with us. My homecare company can special order one in, but I don't know if insurance will cover it. I will call our case manager tomorrow and check into that as well. I have found a few online that aren't too expensive. We'll see.
I'm here.Just hiding.I shot you an email.Love to everyone.
ReplyDeleteAre you going to the IHH thing Tuesday night? If so, we'll see ya there :)
ReplyDeletePraying Jax gets in soon and all goes well.
I hope that they are able to get you in sooner and that everything will be taken care of by then to prepare for this change. I'll be praying! HUGS!
ReplyDeleteKeeping you guys in our prayers
ReplyDeleteI came across a web site last year. I know At one point I was looking for a special kind of nebulizer that my insurance would not cover & I checked with them first to see what they had. Here is the website if you are intrested:
ReplyDeletehttp://www.jtwf.org/
I'm still keeping Jax and your family in my thoughts. I hope that you can get his surgery sooner. I know how much the waiting sucks.
ReplyDeleteWe bought an eliptical a year or so ago and you know what?? I am not bikini skinny at all!! Do I actually have to get on it?? Hope you can get Jax's trach moved up!! I am glad you got out and were able to do some fun things with the boys this weekend.
ReplyDeleteYou know you all are always in my thoughts and prayers! I'm glad you had an uneventful weekend. You guys have too much drama at times and just need a break. Hoping that all will work out for the best with Jax! Have a great week! Love the pic at the start of your post! Too cute!
ReplyDeleteOK I just laughed at your saying "we" hope to be bikini skinny - tell Ray I can't imagine him in a bikini. I think it is great that you have a goal in mind!
ReplyDeleteWhat is LDS?
ReplyDeleteHugs - Tiff