Jaxsons hangin in there. He is on an ungodly amount of oxygen still. He hasn't been on this much oxygen in years. He is on 1 to 1 1/2 liters during the day, and 3 liters at night. Normally they would be putting c-pap on him in the hospital by now. We are counting the days until Friday. Even though its going to possibly be a risky surgery, if he decides to try and balloon the svc. But he needs it desperately. We are watching chest x-rays to keep checking those darn effusions. The more I think about it though, I don't want the chest tubes put in before the cath. That would be two anesthesia's in one week. I'm already worried about how he'll do being intubated in this much respitory distress. Expecially if they bronch him and look at his airway.I need your help again friends. I got bombarded with blankie requests over the weekend. (Good thing I didn't take a flyer to the hospital) A lady found the site, she runs an online thing were they try and spread cheer to sick kids. So seriously they have put down every kid they have to get a blankie. Don't get me wrong, I want every kid to have one that needs one. But that many requests at one time is daunting. I have a lot of helpers that I'm going to be relying on. So if you can help in any way please let me know. Any small donation to the blankie fund. Or even if you want to donate flannel. We use 1 1/8 yard to make the blankies. My email is laceyrugg@hotmail.com if you can help. Thanks again.
I can't sew, but I can donate - It's our turn to give a little back - I'm emailing you :)
ReplyDeleteHang in there!!
Praying for Jax
ReplyDeleteHi Lacy, I will put my mom to work on a blanket. Count on 2 or 3 in the next week or 2. Every day I check in on Jax hoping he has found some relief. Hopefully Friday will be a good day for him.
ReplyDeleteI'm ready to be put right to work. I'll email you too!
ReplyDeletePraying Jaxson will hang in there until Friday and not have to have chest tubes put in before the cath. Do you need anything else besides blankie help? Please let me know!
I will check my material supply, we made a lot of flannel pj for an eagel project. I can crochet a little I've done a baby bib :-} I'll email
ReplyDeleteGlad to hear Jax is hanging in there.
ReplyDeleteThanks for all you do. I'm sure those blankies mean a great deal to their recipients!
Donation sent via PayPal.
I'm praying that Jax does well until surgery and that the surgery does wonders for him! Hang in there Jaxson and Momma!
ReplyDeleteI wish that I could help you make some Blankies, but I don't crochet or sew and I am awfully far away anyway! Hope you get some eager helpers soon! Try not to stress about this, you have enough on your plate right now! HUGS!
Oh handsome Jax, look at you and your cute hair!
ReplyDeleteLacey, I hope he continues to hang in until Friday. I will be anxiously blog-stalking you that day to hear how things go.
((hugs))
Lacey,
ReplyDeleteI praying that everything goes well and Jaxson does great. He looks so cute in that picture. He is such a fighter.
Hi My name is Abby and my precious Will is Trisomy 21 and has a AV Canal Defect,,DORV Repair,Pulmonary Hypertension and Mitral Stenosis.He is stable on meds and He is NG tube fed and is about to recieve a GTUBeplacement.He is also on oxygen.We knew precious little Ethan we were blessed to b his neighbor in the CTICU for 6 weeks.
ReplyDeleteJaxson is in my prayers.anything I can do from AZ please let me know.Anything
ReplyDeleteMany hugs to you, your family and Jax. Will keep praying for your little boy and that surgery goes well.
ReplyDeletesorry to hear you were bombarded with so many requests at one time! I know it's not a lot, but I just sent a little something to help with the blanket fund. It's wonderful what you're doing!
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