I do have some great news for me though. I just found out that two of Jax seizure meds are now in generic, whoopee. You don't know how great it will be to go from 25 dollar copays to 4 dollar copays, ok a lot of you probably understand. But if you take 12 meds times 25 dollars each, thats a lot of money just in meds a month. So I'll take whatever I can get.
I'm stressing a little about Jax. He is waking up at night screaming again. We think once again its headaches, because he's fine when I put him upright in his swing. His bed is slanted up a little, but not enough. He needs his SVC fixed sooner than later. But he also needs his cecostomy done to, but we can't do them together, so there's two surgeries he needs now. I hate to put him through so much so close together, one being an open heart surgery. I mean, how much can one little body take. Although he did have 3 major surgeries in a 3 month span, but give the little man a break. So I don't know what will be first, I guess it depends on who schedules first , and if we have to go out of state for the SVC surgery. So just pray for my little man that he can handle all of this.
Oh Lacey you sure have your hands full with your boys being sick. Sure hope they get over it quick.
ReplyDeleteLots of prayers coming your way.
My heart breaks when I read this stuff! We are getting great items donated I will keep you posted :-)
ReplyDeleteI love the picture of Jaxson sleeping. I'm sure you do too! I don't have anywhere near as much on my plate as you do but when my little ones are asleep, it's wonderful!
ReplyDeleteI hope your family gets better soon.
Patty
Hi Lacie, yes he will make faces or cry if he is hurting then I go through each body part asking if it hurts and he will use eye gaze(right is yes, left no) to tell me whether or not it hurts.
ReplyDeleteBy the way that last pic of Jax sleeping is so sweet
Sorry to hear all the kids are sick. I hope everyone is feeling better soon. Great news on the cheaper prescriptions.
ReplyDeleteWhat a precious little boy. LOVE the photo of him sleeping! Sweet boys you have!
ReplyDeleteOh I am so sorry your boys are all sick! We will continue to pray for them and sweet little Jaxson.
ReplyDeletei know this sounds WAY over simplistic...and I totally hear you on the monthly Rx costs so maybe it's just stupid hope...
ReplyDeleteIs there any chance it's Jax's ears? I know fluid (whether it's infection related or not) can make lying flat awfully painful...
Doggone your little sickos...and I would have crossed my fingers right in FRONT...every time we've gone that route with LC we came home sicker than we went in. You're an old pro and can at least protect him from new germies in the meantime...
Crossing my fingers for a night of sleep for sweet Jax...
Jax looks like such an angel in the picture.He reminds me so much of Zoey ... hair color and all.I pray everyone is on the mend before long and of course I pray for sweet Jax and everything that lies ahead for him.I know he is fragile Lacey but he is so strong at the same time ... make sense??
ReplyDeletePoor Momma! You must be exhausted with all of this going on! I pray that your boys get better really soon and that surgery can be scheduled soon for Jax! I know that the surgeries won't be fun, but to have them over with and have him hopefully feeling better will be wonderful! Hang in there! I'll be praying!!!
ReplyDeleteWe have sickness going on here too. Lots of prayers that everyone gets healthy soon.
ReplyDeleteYou know during out appt, she was surprised that she didn't already have a prescription called in or filled for him already..... That liteally made me sick.... To think that we could've started this a while ago.....UGH......
ReplyDeleteBe proud of me though.... :0) I'm getting more assertive with Avery's doctor's.....I'm usually very passive at things, but since Avery has been born....i am in like full mother bear mode!!!
I'm exhausted just reading your blog,sending prayers for a speedy recovery for all.
ReplyDeleteYou are in my thoughts and prayers!
ReplyDeleteOh lacey - I am so sorry about the flu. I am grateful that your med went generic - what a blessing. Praying for your guys today!
ReplyDeleteI love the picture of jax with his blanket - sweet guy
Hey Lacey! Just wanted to pass on some info I received tonight about a study regarding switching from brand to generic or one generic to another. www.epilepsyfoundation.org/medicationswitching
ReplyDeleteHopefully Jaxson will not notice a difference or it will work better!
OH SWEETHEART..you look like an angel sleeping in this photo...
ReplyDeletelove yaxoxo