Naughty naughty baby

This is where our oxygen is spending most its time these days.

So guess what we got to wear for a while today.

Hopefully that will detour him from pulling. or maybe not.

Look at this bruise from his shot. I wanted to do it in his arms because his poor legs already look horrible. But this is the worst bruise he's ever gotten from the shots.

Jax has an appointment next Wednsday with his cardiologist. He's going to do an echo to check his function and check for clots. Other than that Jax is doing great. He still looks puffy in the face and his oxygen need is still a little higher, but we can deal with that.

Sweet little Charlotte's mom just asked me if Jax could use Charlottes wheelchair. How can I not just cry. Charlotte barely passed away 10 days ago and her mom is trying to better other people's life's. We are going to go look at it and see if it will work for Jax. And of course when Jax can't use it anymore we will find another family in need to give it to. Thank you so much Erin, I only hope to be as strong as you are.

Oh and also I wanted to share what I found from another mom. Alex, who has HLHS, his mom showed me this great website that has kids medical bracelets. This is the cool one I ordered for Jax. They are soft and they fit our tiny kids hands. The website is instyleid.com. You can also have them engraved on the back, go check it out.