Besides the normal hustle and bustle of Christmas, we have lots of appointments this month. Tommorow we have an ultrasound to see if the clot is still there. Then up to the hemo doc to read the results and see what he wants to do with the lovenox. On Sunday night we have a sleep study, I'm not looking forward to that, that means I don't get any sleep. I just hope they don't want to do tonsils and adnoids, they may do it anyway, but he is doing ok at night because he is on O2 anyway, his vocal cords look good ( I'm so glad they didn't trach him when they wanted to) We'll see, I know a lot of chronic kids that didn't do great with tonsils and adnoids, even though it is an easy surgery.
Here is a video of Jax and his babbling that he is doing a lot more. He is having more siezures, but the funny thing is that when he is not siezing he is more alert and he almost smiles.
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