One more week with no internet. They will be here next Monday to hook everything up. I think I might loose my mind by then. Its funny how much you depend on the computer. I have a heck of a time getting specialists phone numbers without going on their website to get it!
I'm still just super stressed, which means my heart palpitations are back with a vengance! I hate them, they give me headaches and make me feel like i'm having a heart attack! I wish I could explain how stressful it is, some of you know. Even though I think my ped is going to be great, it takes time to develop the relationship like I had before. It makes me nuts that I dont have a cell number or a back line to get into. she returned my call, but I was on the other line, and didnt get to talk to her. Since I couldnt call her back, I didnt get what I needed in the first place! I dont like the feeling of him just floating in the wind. Thats not a good place to be with a fragile child. The heater to his vent is different than what we had before. The therapist said it would be better. But I HATE it! I haven't slept since I got it. It puts out ounces of water into the tubing. Even though there is a trap to catch it, some still gets to him. He actually aspirated Friday night. Luckily, it must not have been much, because he recovered on his own, but he dropped his sats and was breathing super fast. She just told me today that the heater I want has to be ordered, and will take a week. Ahh, I dont know if I can handle this one until then!
Its not that California, or Utah, or any state is better than another. Its what you go through when other places are new, and different. It takes time, and I'm trying to remember that. But its soo hard!
Praying for you! Developing a relationship with a doctor that knows your child with out any records in front of them takes time!! You are lucky you found one in the first place... when they thought my daughter had cancer they all sent her away :( I just hope you know that you have people out here sending prayers up to heaven daily for your family!!!
ReplyDeleteI would die without Internet for a week! Good luck.
ReplyDeleteMoving is never fun, and I'm sure Jax's medical needs just complicate that so much. Hope you get settled soon!
ReplyDeleteOh Lacey! I would be stark raving mad by now. Praying for that week to speed by! I have to watch Bell's water level in her tubing too - I have "dumped" her before. THese poor kids, it's one thing after another.
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