Jax has been all consuming the last few days. The times that he sleeps I use to get done whatever I can! He is so junky, that it's non stop suctioning except for the short times that he sleeps. If I didn't have robinol for the junk, and trazadone to help him sleep, I'd be nuts!
We saw his new ped yesterday who did a trach aspirate and swabbed his nasty g-tube site. She was very nice, and she seemed like someone I could talk easily too. The one thing I didn't like, that I'll have to talk to her about, is she brushed off my concerns onto other doctors. I feel like my ped should know everything about Jax, so if another doctor has questions, there is one person that can answer everything about him. So the fact that she didn't really want to hear my concerns, and told me she could give me specialists names to call, didn't sit well with me. I was thinking she could write an order for a GJ button so we could get rid of this stupid tube. But she just told me she could give me GI doctors names. Grrr. I left feeling overwhelmed that I had tons of new doctors to find by myself.
Other bad news, Ray's credit is still too low for a home loan. We need to pull his reports and see what is and isn't showing on there. I need to decide if I want to give in and rent for a few months, which would be super expensive. But I'm tired of only have a couple weeks of clothes, and living out of my suitcase. I want my own place!
So for some good to this post, if you haven't already skipped the other crap! Look at what our princess is doing now!
Don't you love the bare belly and bedhead? Looking good baby!
You can't tell at all that this girl loves to show off, making sure everyone claps for her after her accomplishments!
Any day now, she'll be walking! Which is good and bad news for this momma!
So sorry to hear about all your other hassles...but...GREAT JOB ARINA!!! That is fantastic. She is going to be unstoppable!!
ReplyDeleteI get so excited seeing that you had a new post. HOORAY! That video was cutness at its finest!
ReplyDeleteWay to go Arina! I am sorry to hear about Jax not feeling well, I know that must be hard for you! Sending a hug your way!
ReplyDeleteThat video is awesome! Love it. :)
ReplyDeleteI LOVE her! She's doing so great! Sorry about Jax not doing well, and all the other stress you are going through! Praying it all works out for you soon! Hugs!
ReplyDeleteOh, so sorry about Jax and the frustrations with his doctors!!!! But I am so excited to see this video of Arina!!!! YAY! I just love how determined and excited she is!
ReplyDeleteJust love, love,love Ariana's face of excitement when she is walking!!! She is just GORGEOUS!!!!!!!! I'm still so humbled by your family dear Lacey. I've been a little quiet but your family are never far from my thoughts! Sorry to hear about Jax, hope he turns a corner soon, as usual big hugs for him from sunny south Africa! God bless, megan
ReplyDeleteLOVE the video!!!! How adorable and what a HUGE accomplishment! Sorry about all your stress. hope things settle down soon.
ReplyDeleteYAY Arina! That is some great walking.
ReplyDeleteThat is so exciting. Her and Beau seem like they are the exact same stage walking wise. How exciting!
ReplyDeleteoh my goodness! how exciting! look at her go!
ReplyDeleteok i have to admit i skipped the other crap and went straight to the video:/ But went back after the video:)
ReplyDeleteLove her!!!!!
praying everything straightens out for you. Hope you doctor gets more involved, and hoping she gets more like your last one, what a gem she was!
She is awesome!
ReplyDeleteCredit score...I am so sorry. I would be crazy without my space.