Oh Lacey....these videos are the BEST!! I can't help but laugh right along with you all:) Such contagious laughs & smiles!! Looks like Arina has the drive to get on those feet.....and Jax....*sigh*.....Happy Happy Boy!!
And a life worth fighting for that is!! I just can't believe those big smiles he is giving. AMAZING!! And then there is Arina...to thing about how serious she was just a couple of months ago, WOW!! She is just the light your family needed!! Thank's for brightening up my day too!
Thanks for posting these Lacey. I have been following your blog for a while now and it is nice to see Jax in action. I can tell you love your kids so much and do what is best for them. If I were in the same situation I could only hope to have a fraction of the strength you do! Stacy
I miss seeing you all. Jax has changed so much, doing so much more. These made my smile so much, for I know where he has been. nice to see the sparkle in his eyes. Love you all tons!
Both the videos are so very precious, I can't get enough of seeing Jaxs laughs and smile, he is so so special. I do hope you get some answers and solutions from the other specialist for Jax. This must be so hard. Sending you love and big big hugs to the 2 little precious ones.
Good for you!! btw, when traveled to Boston for Will's heart (after our local drs did two open heart surgeries that had to UNDONE in surgery in Boston) we found out that really there are many ways not to have much cost...#1 most airlines will fly one parent and child for free for medical treatment, we used Midwest...of course we had to fly my husband and our other children out, for the surgery, no way there where not going to be there. Boston has a house called Devon Nicole House, like a Ronald McDonald house, only $25 a night, but sometimes they will wave the fee...I have many friends in Boston who would be happy to pick you up from airport and provide transportation...Sarah, one mom is head of the local DS organization, she is awesome. Also once extened family leaves, you wouldnt need Devon Nicole house, as there are "bedrooms" and good living type space within Hospital for Parent use, free. Of course I stayed in Wills room any way, they are huge there on Parents co-sleeping in the bed, even if child is on vent...they see it as healing not harming...loved it, the best (but take clorox wipes and lots of them...the the units are very clean, rest of hospital (or all of Boston for that matter) can use some hygeine lessons...ugh kknipp@kc.rr.com
Lacey!! Okay first off, watching Arina stand a second and flop on you and then crack up? Hilarous! She is too dang cute. But then watching Jaxson smile and wait for you guys to tickle him again ... melts me. He is doing AMAZING!!
How gorgeous!! Put a smile on my face :)
ReplyDeleteI am seriously crying into my oatmeal right now. They are just so beautiful and precious, Lacey.
ReplyDeleteLoved these!
ReplyDeleteOh Lacey....these videos are the BEST!! I can't help but laugh right along with you all:) Such contagious laughs & smiles!! Looks like Arina has the drive to get on those feet.....and Jax....*sigh*.....Happy Happy Boy!!
ReplyDeleteGave me a pic-me-up, that's for sure! Jax has the most angelic smile and Arina's giggle is the best!
ReplyDeleteAnd a life worth fighting for that is!! I just can't believe those big smiles he is giving. AMAZING!! And then there is Arina...to thing about how serious she was just a couple of months ago, WOW!! She is just the light your family needed!! Thank's for brightening up my day too!
ReplyDeleteI don't know why, but this video of Jaxson has me is tears! He is so precious! - Maureen C
ReplyDeleteThanks for posting these Lacey. I have been following your blog for a while now and it is nice to see Jax in action. I can tell you love your kids so much and do what is best for them. If I were in the same situation I could only hope to have a fraction of the strength you do! Stacy
ReplyDeleteOh my goodness that is a pick me up for sure. So cute.
ReplyDeleteP.S. Aidan said, "I wish we had Arina" after watching this video. =)
She is so precious! I cannot wait to see what you find out from the other specialist for Jax!
ReplyDeleteI miss seeing you all. Jax has changed so much, doing so much more. These made my smile so much, for I know where he has been. nice to see the sparkle in his eyes.
ReplyDeleteLove you all tons!
smiles...just smiles...
ReplyDeleteSo fun Lacey!! Jaxson looks so good! I love seeing him smile!
ReplyDeleteArina is adorable as always! Such cute giggles!!
Maybe you can help me Lacey, I can't see the videos on your blog, or anyone else's for that matter-not even my own!! What am I not doing?
ReplyDeletebeautiful videos! thank you for sharing!!
ReplyDeleteBoth the videos are so very precious, I can't get enough of seeing Jaxs laughs and smile, he is so so special. I do hope you get some answers and solutions from the other specialist for Jax. This must be so hard.
ReplyDeleteSending you love and big big hugs to the 2 little precious ones.
Good for you!!
ReplyDeletebtw, when traveled to Boston for Will's heart (after our local drs did two open heart surgeries that had to UNDONE in surgery in Boston) we found out that really there are many ways not to have much cost...#1 most airlines will fly one parent and child for free for medical treatment, we used Midwest...of course we had to fly my husband and our other children out, for the surgery, no way there where not going to be there. Boston has a house called Devon Nicole House, like a Ronald McDonald house, only $25 a night, but sometimes they will wave the fee...I have many friends in Boston who would be happy to pick you up from airport and provide transportation...Sarah, one mom is head of the local DS organization, she is awesome.
Also once extened family leaves, you wouldnt need Devon Nicole house, as there are "bedrooms" and good living type space within Hospital for Parent use, free. Of course I stayed in Wills room any way, they are huge there on Parents co-sleeping in the bed, even if child is on vent...they see it as healing not harming...loved it, the best (but take clorox wipes and lots of them...the the units are very clean, rest of hospital (or all of Boston for that matter) can use some hygeine lessons...ugh
kknipp@kc.rr.com
Both videos are just priceless!
ReplyDeleteBeautiful, beautiful children! Jax has one of the best smiles I have ever seen and Arina's laugh is contagious!
ReplyDeleteLacey!! Okay first off, watching Arina stand a second and flop on you and then crack up? Hilarous! She is too dang cute. But then watching Jaxson smile and wait for you guys to tickle him again ... melts me. He is doing AMAZING!!
ReplyDelete