Keep on keepin on!

Still waiting, always waiting on doctors!
My ped now tells me she thinks he's aspirating his own secretions. We know that already, he's been doing that since he was a baby. I don't think that would bring sudden worsening of his lungs. She told me pulmo and cardio are going to talk and then let me know what they think. I've decided that we are going to CHOP no matter what! If CHOP tells us that its the aspirating, then I will believe that is the truth and we'll fix that problem. But I want them to take a good look at his heart, lungs, and his messed up vascular system. It will put this momma's heart at ease to have the best tell me there's nothing to be fixed there. Sorry Boston friends, Boston Childrens has yet to get back to me, and since we've already talked to CHOP, thats where we'll be heading. I guess you'll just have to drive to Philadelphia to see us ;)
RSV has now had some confirmed cases here, so we are getting into the heart of flu season. So more careful with Jax we have to be! I've been a little paranoid the last few days. He's been more junky, I've had to give a few doses of robinol. This morning his heart rate was high for him. 150's when he's normally in the low 100's awake. Praying this doesn't turn into anything, he can't afford that right now!

I found some pictures on the counter last night. They were pictures I had in my wallet, and dumped them on the counter when I cleaned my wallet out to go to Ukraine. I had to post them, because they are so dang cute.
Mondo looks so little! Since starting Junior high, he has grown up before my eyes!

Oh my Tanner. This was his graduation picture from his autism school, Pingree. He has tears in his eyes. Trying to get autistic children to put these clothes on and sit for a picture was quite an ordeal. I'm just glad we got a smile out of him!

This was when we first grew Carters hair out. He had bangs then. Some people like the bangs, I think they make him look more like a girl!

Best of all, baby Jaxson. This first one he's about 2 months old. I need to find my angel pic of him that was taken at the same time!

These last two were taken when he was about 9 months old. It was right after he got out of the hospital from his long stay. He was really weak so we had to prop him with his hands.
Look at that wild hair!