The pumpkin patch

Jaxson seems to be slowly improving. He's tolerating the vent and sleeping better at night. He didn't gag or wretch at all yesterday. So now I just need to decide when its time to try feeding into his belly instead of his intestines. We'll stick with continuous for a while of course, his belly hasn't had anything in it for a long time, so it needs time to get used to food.
We've had a lot of reminders of just how fragile he will always be. Once I landed in Ukraine, I couldn't believe I had let myself go so far away from him. Auntie Boo asked me the other day why was he taking so long to recover from this tummy bug. His body is just so sick and tired. It takes all of his energy just to function normally. You throw something nasty in there and everything just shuts down. I was reading a heart baby's blog that I found this morning. This sweet baby passed away a short time ago. Man it was hard to read, it makes everything such a reality. She talked about his whole life being spent in a hospital, being poked and prodded. It made me realize that Jax his home, but he still spends his life being poked and prodded. Twice a day he's poked, he has air forced into his lungs so he can breathe. We really do run a mini PICU in our home.
I'm just so grateful for the spunk and fight that my little boy continues to have. He wants to see his baby sister!

We went to the pumpkin patch over the weekend. Jax did what he does best, slept through the whole trip! We picked a pumpkin for Arina, since she couldn't come with us. I also just bought her's and Jax coordinating Halloween costumes. Oh its going to be so cute! You'll have to wait and see pictures, lets just say its definitely a Rugg family favorite!