Halloween parade

Cardiology called, and he wants to double his diuretic through the weekend. We can't go any longer than that without needing to check his electrolytes, which she doesn't want to do now. We have no veins left to draw from, so she wants to wait until we absolutely have too. But we still need that lovenox level. It makes me nervous, as that is a huge diuretic dose for him! His normal dose is high for a child his size, but every time we try to lower it, he has respiratory distress. Of course, in the hospital he has been on diuretic drips. But that is in the controlled hospital environment. Cardiology also said the we could do some imaging to look for clots. My ped doesn't like the idea of putting him under yet again. An MRI, to me, would not be a big deal. Because of the trach, we don't have to worry about intubating him, which was always the main problem. Plus its not invasive. I would be ok with that. The cath lab, is much more invasive. And every time we enter his veins, we risk that he will clot them off, not good!
I think I will email his hemo doc myself. Maybe he can say what he feels would be best!

Yesterday was the Halloween parade at the boys school. It was really nice because Mondo has late start on Fridays, so he was able to come and help me!
Jax was the hit of the parade! I tell ya the Mickey was a great idea! He was stopping the parade, as teachers and students stopped to look and swoon over him. We had him on our laps, as there was no room for the stroller, and people were going nuts!
Sorry these pics aren't great. I'll get some better ones tonight. I don't have daddy's super nice camera. And trying to catch a moving target is not easy!