Crazy days!

These last few days have been seriously crazy. I know I have so much still to do, but I wander the house aimlessly, my brain trying to decide what to do first. Then nothing gets done! Makayla's crib is up, and that room is about ready for my nieces that will be staying there while we are gone, and then for Makayla herself!
Carter has a nasty cold. I call it the back to school cold. The bad part is now Jax is junky. I knew he was going to do this right before we left. I'm just praying it doesn't get any worse than it is now. My ped didn't seem to concerned, she said its just the Rhino virus going around. Rhino virus seriously lives in Jax body, it comes up on every VRP he ever gets! The last two days he's been super junky, but no oxygen increase or fevers. Pray it stays that way. If he's sick the day we fly out, I'll go nuts!
His albumin level is low again. Cardio thinks its just because he's got this cold, but I noticed his puffiness before the junky cough started. This is another frustrating thing to leave behind. We'll recheck the level Wednsday, to see what it does. But if it gets lower while I'm gone then he'll need to go in and have IV albumin.
The good thing is I signed up for this online health center where I can see all of Jax labs, x-rays, and talk to his ped through email. This will be really helpful when I'm out of the country so I can see whats going on with him and keep in touch with my ped.

Thanks again to all of my friends, you guys are my rock!
And to all those that only want to stir up trouble, go elsewhere! I'm not putting this blog to private because that would be what you want, and there are far to many people that come here to narrow it to 100. This is not only my journal of our journey, but a support group for all things special needs. Things are not always kicks and giggles in the life of medically fragile special needs. So if you don't like the whiny posts, don't come back! But trying to tear us apart will only make us stronger! Period!