Hault, about face

Isn't it so true that our kids take one step forward and about 10 steps backwards, making it imposible to get ahead?
We are not going home today. I am hopefull that we can tomorrow, but he had a horrible night. I feel so bad for daddy, he seems to always be the one here when something happens. Last night around 2 in the morning, daddy was suctioning him, and his sats started dropping. Then they wouldn't come back up. The nurse came in and he continued to drop, to around 20. Another nurse came running and they bagged him. They almost called a code, but were able to bring him up on their own. He is also not tolerating feeds still. I had a great suggestion though. Switch him to a GJ tube, let his g port vent, and feed him through the j port, so his stomach is always venting. Hopefully before too long he'll get used to the trach and stop swallowing so much air. That is the plan, they thought my idea was brilliant, I told them they would be getting my bill, and I charge a LOT for my services.
They are still watching him for those episodes, I think he just got pissed, they didn't give him a break to bring his sats up a little, and he got passed that point of no return. The point when they need help to bring their sats back up.
So I'm praying we get the gj tube in today and home tomorrow, I'm not telling Jax though, he will throw another curveball if I do. I also think I'm going to go home to sleep tonight. He's been having such hard nights, that if we stay here we don't sleep. Me and daddy are both zombies right now. So we need to sleep if we are going to bring him home tomorrow and get all of his new equipment set up. Being a trach he is a one -to -one, so someone is always sitting outside his door. The tech that will be here tonight is one of my good friends, and she loves Jax. I feel confident that she will hold him if he cries, and take great care of him.

Oh and the H1N1, we do have to wait, but he did tell me we could get him in the back door if we let them know he can't be around everyone. It makes me crazy that they aren't caring about our medically fragile kids. I'm not freaking out about the virus, but I do want him to have the vaccine. I have now heard that the healthy people are being more affected because their strong immune systems are fighting it harder. The reason why its so rampant is because its new and no one has been exposed so everyone is catching it. I am just concerned about any virus with him, so we'll do all we can.