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Friday, September 25, 2009

He's done

He's all done. They were able to balloon open the SVC. Not completely open, but it brought the pressure above down by half. The bad part is we don't know if this will help or not. His upper body is such a mess of blocked veins that it could be other ones helping with this problem.
He is still intubated, and they just told me that they aren't even going to attempt to extubate him until ENT comes up and looks at him.
I will post some more pics tonight. He's doing ok, thanks to everyone's prayers.
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32 comments:

  1. The VW'sSeptember 25, 2009 at 1:03 PM

    Glad to hear that he is done and that the procedure seems to have helped some at least! I'll keep praying for him and you! Thanks for updating! HUGS!!!

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  2. MichelleHSeptember 25, 2009 at 1:25 PM

    Prayers for you and sweet Jax. We are all rallying for you! What a strong boy you have.....it's obvious he gets his strength from his amazing mama!

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  3. DawnSeptember 25, 2009 at 1:29 PM

    I'm glad to hear that the procedure is done and I'm hoping that he can be extubated soon.

    Sending you and Jax warm thoughts.

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  4. Trina and JophieSeptember 25, 2009 at 1:39 PM

    Still praying girlie...

    Trina and Jophie

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  5. MelissaSeptember 25, 2009 at 1:55 PM

    WOW, so glad that it went ok!!! Hang in there Lacey, I'm sure you are very frustrated & EXHAUSTED by now. Pls know that you have so many people praying for you & Jax!! Hopefully this will give him some relief?
    {{hugs & lovin}}

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  6. MelissaSeptember 25, 2009 at 1:56 PM

    That is good news! I hope that you get to see him soon!

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  7. Mama Mason-MannSeptember 25, 2009 at 1:56 PM

    Thank goodness he's done. That's a relief. I know a lot more to come still, but at least that part is done. . .

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  8. UnknownSeptember 25, 2009 at 1:58 PM

    So happy that he is finished. I will continue to pray as you await the ENT.

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  9. UnknownSeptember 25, 2009 at 1:59 PM

    I'm glad to read this post. What a trooper he is. Praying for extubation soon. I'm sure you are just exhausted right now. Please try to get some rest. I know that's easier said than done.

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  10. JeanaSeptember 25, 2009 at 2:33 PM

    I glad he's done. You are exactly right! He has a quality of life and he deserves every thing they can try and do to help his little body. He has so many who love him dearly and have been uplifted by his huge spirit!

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  11. KristinSeptember 25, 2009 at 2:35 PM

    Relief that he's done for today. Hope this does the trick. Love you Jax - we're walking for you tomorrow buddy!

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  12. Alaina and KyleSeptember 25, 2009 at 2:45 PM

    Oh that is good news...we have been thinking of you guys today!

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  13. EmilySeptember 25, 2009 at 2:52 PM

    So glad he is done! Hope he will feel some relief. XOXO

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  14. HeatherSeptember 25, 2009 at 3:02 PM

    Keeping you close in thought and prayer.We love you. all!

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  15. Alan AndersonSeptember 25, 2009 at 3:06 PM

    So glad to hear he is done. I hope you will see some improvement in him with what they were able to do. Praying he gets extubated soon! Thanks for all your updates! Hugs to all of you!

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  16. Shelly TurpinSeptember 25, 2009 at 3:12 PM

    so glad he is done - been so worried!
    hugs from across the miles for all of y'all!

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  17. KimSeptember 25, 2009 at 3:59 PM

    Keeping that little fighter in our prayers!

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  18. AlisonSeptember 25, 2009 at 4:54 PM

    Thanks for keeping us updated Lacey. I will keep you all in my prayers.

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  19. Kim ReesSeptember 25, 2009 at 5:04 PM

    Praise the Lord Lacey! I have been out of touch with the blog world for over a week due to my dad passing away. I am so happy to hear some good, and positive news. Hugs and well wishes are coming your way!

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  20. JuniorSeptember 25, 2009 at 6:51 PM

    I am so happy to hear that the he is done and that it was at least somewhat successful.
    I have been at appts. all day and couldn't wait to get home and check on Jax. Big hugs and lots of prayers.

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  21. Cammie HeflinSeptember 25, 2009 at 7:58 PM

    Glad to hear it Lacey, still praying for little man tonight!

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  22. StephanieSeptember 25, 2009 at 8:13 PM

    Oh holy moly, I can breathe now.

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  23. Colton's JourneySeptember 25, 2009 at 8:39 PM

    Happy to hear things went well. What a handsome little guy!

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  24. Baylee and Blair's pageSeptember 25, 2009 at 9:17 PM

    I'm so glad that everything went well. So, you guys are close by home right? Not in Boston?

    I had to go back and do some reading!

    Big Hugs - Tiff

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  25. AnonymousSeptember 25, 2009 at 10:45 PM

    So happy to hear he is doing good. We have been praying all day for Jax. Amazing how strong our lil warriors are :) Give him a huggle from us and we will continue to pray! :D

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  26. ShariSeptember 25, 2009 at 11:18 PM

    still praying Lacey!

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  27. TinaSeptember 26, 2009 at 3:47 AM

    Sitting at the other end of the world and thinking of Jax and everything he is going through and you and how brave and strong a person you must be. You have all touched my heart so deeply. Yes Jax deserves whatever it takes to make his quality of life better and I will continue to pray for him.

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  28. ChristineSeptember 26, 2009 at 7:49 AM

    Glad to hear that he came through surgery. Continuing prayers for Jax.

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  29. ANewKindOfPerfectSeptember 26, 2009 at 8:17 AM

    Thank goodness he did well! I am glad to read that his pressures went down so quickly. That's great. I hope the ENT portion goes smoothly as well.

    ((hugs)) to you Lacey! I wish you were here at CHOC, we're being admitted Monday. We could console one another!

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  30. chSeptember 26, 2009 at 2:37 PM

    Looking forward to more posts of continued progress...hugs to everyone...

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  31. MichelleSeptember 26, 2009 at 9:25 PM

    Glad it is over with and that they were able to at least release some pressure. Praying for good news with the intubation!

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  32. BeccaSeptember 27, 2009 at 2:24 PM

    I'm so glad it's done! I hope you can get some answers soon (next post), and that he recovers well and swiftly.

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