Not for the faint of heart

I asked this mom if I could repost these poems that she wrote for her little girl Charlotte. She had trisomy 16, and was not expected to survive. But she lived to be a big 3 1/2. She just passed away Saturday from RSV. This first poem she wrote in January before Charlotte passed. Its so cute and it hits home with so many of us. Read it and you'll see.

Goodnight Boo

In Boo's room all painted in pink

there is a feeding pump with lights that blink

and alarms that ring if the tube has a kink.

And an IV Pole and a feeding bag full

of Pediasure, good for body and soul.

And an air purifier and a humidifier

and a pulse oximeter with 5 feet of wire.

And a night stand and a floor fan

and a red lit probe taped to Boo's foot or hand.
And Breath Right Strips and Tender Grips

and Albuterol and Tylenol

and a princess night light shining down the hall.

Goodnight Boo.

Goodnight to all your special things too:

Good night wire, and humidifier

Goodnight fan and IV stand

Goodnight Grips and Goodnight Strips

Goodnight meds like Prevacid and

goodnight to pumps that keep you fed.

Goodnight to steady vital signs

Goodnight to tube and probe and lines
Goodnight to blinking lights and beeps

Goodnight to Boo, now fast asleep.

Isn't it sweet? I will post the other one tomorrow. She just wrote it for her funeral, and trust me, you better bring the tissues.