Doctors visit

We took Jax back in today. He is up almost a pound, which normally would be great news. But he hasn't gained a pound in the last year, let alone the last week. So that means it is all fluid weight. We did a chest x-ray, which did show that his heart is larger than the x-ray last week, but his lungs don't look a whole lot worse, but his oxygen need has gone up a tiny bit more to 1 1/2 liters. This sugests that he is in a little bit of heart failure.

I thought we were going to be heading up to the hospital for a stat echo, but the cardiologist doesn't think its necesary (spelling) yet. We are going to up his dieuretics a little to get some of the fluid off. I don't trust the cardiologist's that much. We have had bad experiences with them before. For some reason they don't seem to pay that much attention to Jax. There are other kids up there that they seem to bend over backwards for, and sqeeze them into surgery whenever they need it. But they let Jax sit on the ventilator for 4 months because they said the schedule was full. Bull crap, you can't tell me there wasn't a kid at home scheduled for surgery that was not as sick as Jax that they couldn't bump.
Sigh
Ok, I'm done ranting. Luckily our pediatrician is on top of it and she knows how to get things done. We will go back on Friday and recheck his weight and an x-ray to see if the extra dieuretics are working. Because he has a valve that is barely working, having RSV has put a lot of strain on his heart and it is working overtime. But I'm sure they won't go in and replace his valve until he is so sick that a machine has to breath for him.

I'm really not bitter, Uhhm

See how puffy the bottom of his face is? And its hard to see but his eyes are puffy too.