Pity parties and surgeries

Well I finally had my breakdown day, it doesn't happen often, I'm a pretty easy going person. And the day started out great. We met with Rhett and his mommy at Red Robin for lunch. It was a blast. Just let me tell you Rhett is as cute in person as his pics. Of course I forgot my camera so hop over to her blog, thebirdflock, and check them out.
After we had lunch we headed to the hospital. First was our ENT appointment. We scheduled surgery for his tonsils and adnoids. There is not much they can do about his nasal airway, so we will see what that does for him. Then we went down for our upper GI. We sat in the waiting room for an hour. I saw the guy come out and take a baby that had just gotten there. When he finally came and got us I told him he passed us and took the baby first. Oh he was full of apologies, ha (can you feel the sarcasm?)
When we got the upper GI he immediatly began to reflux the die, so the radiologist hurried and sucked it out with the syringe. Well the nisson is not working, yeah (again the sarcasm?)
On my way out I called my doc's office to see if she wanted an NJ tube put down while I was still up there. An NJ bypasses the stomach and goes into the intestines so they can't reflux it. And it has to be done in radiology.
Well my doc is on vacation till tommorow, so the doc on told me to go to the ER for the NJ. I asked her why she just couldn't order it. Well she wouldn't. So we headed to the ER where we hid in the corner until our turn to go back so as to stay away from all the sick kidos. We sat in the stupid ER for 5 hours. I was starving, exhausted, and thinking as the minutes kept ticking away that I still had a 45 minute drive home. They gave him a GJ which just takes his G tube down into his intestines and we finally left at 10:00pm. But now he needs to have surgery to fix his nisson. So today we end up with two surgeries. Its amazing what these little hero's can go through and still stay strong. I'm hoping they will put the two surgeries together, but that will be a double wammy on poor Jax, it will take him a while to recover.
So when I get home at 11:00 I don't just get to go jump in bed. I have to get Jax jams on, his meds down, give him his shot, set up his feeds and hook his monitor up. Then I finally get to eat cold pizza while I write this blog to wind down. Then I think about how I have to get up in the morning and get my boys to school. There just going back from Christmas because they have been off track. So now I get to take my seven year old autistic son kicking and screaming to school. And he is upset because his schedule is changing again, and a normal school day is to long for him, but his school is not helping me at all on what we can do to help him.

Sigh
In the morning I will wake up a happy camper again after this pity party tonight. I know God gave me two special needs kidos for a reason, and I wouldn't trade them for the world. So now I'm going to try to get my exhausted self to sleep,(and pray Jax sleeps all night) and then get up and do it all again.
Goodnight friends!