tag:blogger.com,1999:blog-2212485478080287079.post4294876700208677142..comments2023-08-28T03:10:39.279-06:00Comments on Jaxsons Fight: Echo resultsLaceyhttp://www.blogger.com/profile/03321275110857561824noreply@blogger.comBlogger29125tag:blogger.com,1999:blog-2212485478080287079.post-24776723759265516862009-09-07T23:04:09.042-06:002009-09-07T23:04:09.042-06:00Is this Dr. Day?
We are keeping you guys in our p...Is this Dr. Day?<br /><br />We are keeping you guys in our prayers!<br /><br />Parker has a cath on the 25th.ParkerMamahttps://www.blogger.com/profile/02699831003510100066noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-17990519014082659142009-09-07T18:13:20.241-06:002009-09-07T18:13:20.241-06:00make that room 3087 - pod Omake that room 3087 - pod OKristinhttps://www.blogger.com/profile/11988590894638135312noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-1123053805003323452009-09-07T18:10:58.194-06:002009-09-07T18:10:58.194-06:00We may still be there Wednesday - if we come home ...We may still be there Wednesday - if we come home sooner, I'll email you. One nurse told us they sometimes send you home if the echo in the morning looks good. But they have to sedate him, so I can't imagine with how he came out of sedation on the last echo, that we'll make it out Tuesday...<br />We moved again today (something about re-doing the floors and a bad smell)... we are now in 3088.<br />Good luck on the MRI.Kristinhttps://www.blogger.com/profile/11988590894638135312noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-22945139171477564932009-09-05T20:28:28.999-06:002009-09-05T20:28:28.999-06:00Hang in there! I'm reading all these blogs ton...Hang in there! I'm reading all these blogs tonight and just crying. I have nothing to give you, but good thoughts and prayers. I hope you have a great weekend.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-78512155754695836722009-09-05T06:56:40.106-06:002009-09-05T06:56:40.106-06:00Lacey we are praying for you and sweet Jaxs. Keep ...Lacey we are praying for you and sweet Jaxs. Keep fighting Jax is so lucky to have you for a momma!!!Blessed with Boyshttps://www.blogger.com/profile/04764109747087733076noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-42644759833051066962009-09-04T21:16:02.258-06:002009-09-04T21:16:02.258-06:00Lacy, we'll be following your blog with prayer...Lacy, we'll be following your blog with prayers. You sound like such an amazing person. It's ok to have a breaking point, don't feel like you can be super mom all the time. We hope you feel better and of course we'll be praying for Jax.Chris and Kiretahttps://www.blogger.com/profile/09544576988267494838noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-69756621149295121632009-09-04T20:33:30.259-06:002009-09-04T20:33:30.259-06:00Baylee takes both Viagra and Amlodipine. Our insu...Baylee takes both Viagra and Amlodipine. Our insurance pays for both... even though I pay $60.00/month for each one! The Viagra didn't do much that I could tell. But, when they started her on the Amlodipine the pressures went down and so far no more syncope spells!<br /><br />I continue to pray that they step up and take the case. After all, they were VERY encouraging for us to come there when we did! JUST CALL OR EMAIL THEM! Doesn't matter if they don't know who you are! They will talk to you! <br /><br />Hugs - TiffBaylee and Blair's pagehttps://www.blogger.com/profile/07362201977840208654noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-68105118133144226142009-09-04T18:02:31.397-06:002009-09-04T18:02:31.397-06:00Lacey,
What an amazing mother you are! Sadly enoug...Lacey,<br />What an amazing mother you are! Sadly enough their are moms out their who would have given up. I know because I have a friend who works as a RT in a 24/7 center for sick children. Some of these parents never visit their children. I will pray for continued strength.Kimhttps://www.blogger.com/profile/05464045194591166819noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-39230940910090236562009-09-04T16:52:08.804-06:002009-09-04T16:52:08.804-06:00Hope you have a great RELAXING weekend! You deser...Hope you have a great RELAXING weekend! You deserve to rest...FOR SURE!<br /><br />Hopefully Jaxson will get some real answers soon?? UGH, why do insurance companies have to "rule" what meds our kids get to have...Poor little guy, he just needs to get better soon!!!!<br />Please let me know as soon as you can about Boston. Praying so hard that Jaxson get's a miracle treatment & he can just move forward...poor baby & poor Mommy! <br />Lacey, again...I hope you have a great relaxing weekend...Please get some rest!!<br />LOVE & {{HUGS}} from CT!Melissahttps://www.blogger.com/profile/02836918583076227118noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-53401445356604333772009-09-04T13:00:24.826-06:002009-09-04T13:00:24.826-06:00Lacey,
I just don't know what to say to you th...Lacey,<br />I just don't know what to say to you that others haven't already said. It's okay to crash. I had my crash back in May and I've been through nothing like you! So know that you are strong, but only human and at some point you will have to take care of you. Thoughts and prayers are headed your way AS ALWAYS!<br />love, aimMama Mason-Mannhttps://www.blogger.com/profile/06917976774636808205noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-37493049879696188852009-09-04T12:07:50.235-06:002009-09-04T12:07:50.235-06:00Lacey, sweet Lacey. My heart is full for you and ...Lacey, sweet Lacey. My heart is full for you and Jax. My words can't express them though. As always, y'all continue in my prayers. May you have the strength you need for this day, and then the next and then the next. Hang in there, my friend.Shelly Turpinhttps://www.blogger.com/profile/09076447364643644461noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-86579293230466061532009-09-04T11:49:17.846-06:002009-09-04T11:49:17.846-06:00You are in my prayers and I think of Jax daily. Y...You are in my prayers and I think of Jax daily. You are a great mom Jax is lucky to have you fighting for him. I hope you get some peace with your mini break.Christinehttps://www.blogger.com/profile/16683359522742450137noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-30474628857059673052009-09-04T11:17:37.883-06:002009-09-04T11:17:37.883-06:00Oh Lacey... I pray for you and your family daily. ...Oh Lacey... I pray for you and your family daily. I pray for answers, health, and peace. You truly deserve it. Enjoy your time in Park City.Emilyhttps://www.blogger.com/profile/05573655586853387634noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-87481425562298710922009-09-04T06:28:00.270-06:002009-09-04T06:28:00.270-06:00Dear Lacey, This is Joyce. I just want to wrap my ...Dear Lacey, This is Joyce. I just want to wrap my arms around you and give you a big hug. I have been where you are a few times over the years. If we were rich and famous we would be able to go to some plush spa for a few weeks and tell the world we are taking a break for exhaustion. Instead we push on for the sake of the children. Hopefully a little break with Michelle will give just enough juice to keep going until you get into see the doctor. <br /><br />I am at a loss for what to say for dear Jax. I pray someone can figure out some course to help him. You have to be just so frustrated with his medical questons.<br /><br />I am praying and thinking about you.My name is Sarahhttps://www.blogger.com/profile/12532019900834158013noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-45375501510421825632009-09-04T05:46:58.140-06:002009-09-04T05:46:58.140-06:00Many prayers, as always! Enjoy your weekend away, ...Many prayers, as always! Enjoy your weekend away, it sounds like it is VERY long overdue...Ali Harperhttps://www.blogger.com/profile/13105062482016360284noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-18119507761513572472009-09-04T04:18:33.869-06:002009-09-04T04:18:33.869-06:00Ypu've gotten this far..you can do it! I know ...Ypu've gotten this far..you can do it! I know you're tired, how you would just like to rest. Really rest.. your mind and body. We will try to help with prayers, that's what we can send to you. <br />menwhile have a great time with michelle and her beautiful dumpling, get a little rejuvenated. Jax has a strong Mama, that's why he's yours... you're the best for him.Stephaniehttps://www.blogger.com/profile/10792117187001612101noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-76845557376135619802009-09-04T02:16:39.164-06:002009-09-04T02:16:39.164-06:00You are all in my thoughts and prayers. I hope th...You are all in my thoughts and prayers. I hope the weekend away helps you to feel a little better.Alisonhttps://www.blogger.com/profile/09793960049542281502noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-27098219962534516452009-09-04T00:29:27.253-06:002009-09-04T00:29:27.253-06:00Oh Lacey - I was hoping you would have more answer...Oh Lacey - I was hoping you would have more answers than questions today. See that whole Pulmonary Hypertension is so confusing - at least I believe so. Maybe now you will get medicine for PH and maybe that will help Jaxson. I wish today would have gone better.....<br /><br />Have fun partying in Park City with Michelle and Miss Preslie. I am sure it will be a fun filled weekend. We will continue to keep sweet Jaxson in our prayers and you as well. Please, please, please let us know what we can do to help - you are a great friend and we would be happy to help in any way.<br /><br />Loves and hugs to both of you!<br />Kristi and CarterAlan Andersonhttps://www.blogger.com/profile/16203393819140750852noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-90324584433494489442009-09-03T23:56:23.394-06:002009-09-03T23:56:23.394-06:00Oh, Lacey, I wish I knew what to say to you. I do...Oh, Lacey, I wish I knew what to say to you. I don't!!! I just know that somehow you will keep plugging along. And somehow things will work themselves out. I wish so much that there was something I could do to help you. Right now my heart is just heavy for you.....not much of a pep talk, huh??? I am so happy (and jealous) that you will be spending time with Michelle and Miss Preslie this weekend. You will have a ball I am sure.Denisehttps://www.blogger.com/profile/00587160152394379314noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-43285384201101385732009-09-03T23:46:29.678-06:002009-09-03T23:46:29.678-06:00I pray that you are able to have a fun and relaxin...I pray that you are able to have a fun and relaxing weekend! If anyone deserves it, you do! I'm surprised that you haven't broke down before this actually! You have had some VERY STRESSFUL years! Sometimes we are brought to our breaking point, just so we give all of our stress over to someone els.....family, friends, and most importantly, God. I pray that you will be able to find some help during this very difficult time! I'll be praying for you and thinking of you often!<br /><br />I'm actually surprised that Jax hasn't been on Viagra through all of this! I was told that insurances will usually pay for it, but only if it's ordered by it's other name, which totally escapes me at this time. Then they think it's being used for a good reason. I hope that this works for him!<br /><br />Hang in there Lacey and try to take care of yourself! I SO WISH that I was closer to help you and your family out! HUGS!!!The VW'shttps://www.blogger.com/profile/05116325494368190699noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-605010748755384392009-09-03T23:39:13.247-06:002009-09-03T23:39:13.247-06:00Oh my dear Lacey...I have been hoping you'd po...Oh my dear Lacey...I have been hoping you'd post tonight so I would know what was going on and not have to wait til I see you! Prayers always, help always, friendship always...we'll all get there together my friend, to some peace, some answers for Jax and health for everyone! Talk to you soon my dear friend!Michellehttps://www.blogger.com/profile/00178966273762200571noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-18731828122573010532009-09-03T23:33:39.288-06:002009-09-03T23:33:39.288-06:00Praying for you Lacey. I have been having the same...Praying for you Lacey. I have been having the same issues, and ya. Mine just haven't been about Rhett. Andy and I have been really struggling and it's a long story, but I think things are better now. <br /><br />I just want you to know that I feel your pain, and I wish these Dr's would get off of their asses and take care of Jax. <br /><br />Rhett's on viagra. Amalodipine didn't work for him. He's my little stud muffin. :D<br /><br />Anyways, that brick wall? It will get better I promise. I feel more like I've hit a big thorny hedge right now, and in my world that's a step up from the brick wall. At least you know that you could possibly get through that hedge someday. <br /><br />Just want you to know that I am thinking of you lots and sending lots of hugs. <br /><br />I wish we could have come to your party that you had last month, but Rhett had RSV. I figured that's the LAST thing you needed. <br /><br />Love you guys.Pamhttps://www.blogger.com/profile/10449171111666867354noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-70450500384016966182009-09-03T23:08:33.992-06:002009-09-03T23:08:33.992-06:00As always you all remain in my prayers! Wish I cou...As always you all remain in my prayers! Wish I could give you a great big hug all the way from sunny south africa! Keep going my friend, God will carry you! Jax is blessed to have a mother like you, you are truly inspirational! Enjoy the time away to recharge your batteries! God bless! Megan and KeatonConrad, Megan and Our Precious Keatonhttps://www.blogger.com/profile/03179201068525011071noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-69708412019475382232009-09-03T22:47:43.678-06:002009-09-03T22:47:43.678-06:00Oh my sweet friend.You are tired.Mentally and phys...Oh my sweet friend.You are tired.Mentally and physically.You have managed merely in survival mode and you have done it beautifully.You need rest.You need to get tot he doctors and you NEED your baby fixed.Everyday I pray for something to give for Jax.A corner turned and a break for a little guy who so deserves one.I'll offer up our cardiologist again now that you know a bit more.Might be worth a trip.Closer then Boston and # 3 in the country.Think about it.I'll call tomorrow if you want me to.Till then,enjoy the weekend and kiss Michelle and Preslie for me.Heatherhttps://www.blogger.com/profile/04209967185741239050noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-23255142373443319142009-09-03T22:32:25.445-06:002009-09-03T22:32:25.445-06:00Feeling so helpless just reading about everything ...Feeling so helpless just reading about everything you are having to go through, not to mention little Jax, my heart goes out to you. I pray hard that you get Jax on the right treatment as soon as possible, it must be so hard just sitting and watching and waiting for answers. Continuing to pray for dear sweet little Jax and for good news soon!Tinahttps://www.blogger.com/profile/15552691097146215450noreply@blogger.com