tag:blogger.com,1999:blog-2212485478080287079.post2118320532528487778..comments2023-08-28T03:10:39.279-06:00Comments on Jaxsons Fight: More fun with SantaLaceyhttp://www.blogger.com/profile/03321275110857561824noreply@blogger.comBlogger27125tag:blogger.com,1999:blog-2212485478080287079.post-88712480130970387682010-12-17T16:22:38.997-07:002010-12-17T16:22:38.997-07:00Oh that baby girl is so pretty! I don't think...Oh that baby girl is so pretty! I don't think I've ever seen eyes so blue. I bet her brothers spoil her rotten!Heatherhttps://www.blogger.com/profile/11652856706985473806noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-26493916787411801502010-12-15T08:15:01.096-07:002010-12-15T08:15:01.096-07:00Jaxson's smiles is everything Lovable! Arina ...Jaxson's smiles is everything Lovable! Arina looks beautiful in her Christmas dress!Meghannhttps://www.blogger.com/profile/06402393610265527474noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-3154105022501013652010-12-14T17:50:17.969-07:002010-12-14T17:50:17.969-07:00Love that red bow!Love that red bow!Anonymoushttps://www.blogger.com/profile/04083710190185453271noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-30855926723321461552010-12-14T09:44:55.321-07:002010-12-14T09:44:55.321-07:00Outfits are ADORABLE!Outfits are ADORABLE!Evie's Storyhttps://www.blogger.com/profile/05377741313846502158noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-8219597101338974022010-12-13T14:59:01.544-07:002010-12-13T14:59:01.544-07:00Sometimes hope is all we have, so you go right on ...Sometimes hope is all we have, so you go right on hoping girl!!! I'm so happy for you - that you get to feel such joy right now. you certainly deserve it. Hugs and love from CT!!!!Mama Mason-Mannhttps://www.blogger.com/profile/06917976774636808205noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-53150058921033937782010-12-13T07:56:13.381-07:002010-12-13T07:56:13.381-07:00Love those smiles Jax! You are such a handsome bo...Love those smiles Jax! You are such a handsome boy! And, it looks like your baby sister loves you A LOT too! So cute!The VW'shttps://www.blogger.com/profile/05116325494368190699noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-18739582001130301972010-12-13T05:47:49.412-07:002010-12-13T05:47:49.412-07:00Oh I am in tears right now looking at the pictures...Oh I am in tears right now looking at the pictures of Jaxson. I have hope too!! He is so handsome - all your boys are, but Jaxson just melts my heart. Blessings to you and you beautiful family.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-35697769028657986562010-12-13T01:55:45.733-07:002010-12-13T01:55:45.733-07:00It sounds like things are looking up for you, and ...It sounds like things are looking up for you, and you're getting settled into life with 2 babies. Glad to see all the beautiful pics :) Never give up hope on Jax being able to do those things. Lib had brain damage and wasn't suppose to be able to walk or talk. But you know that didn't end up true. Merry Christmas to you and the family.LibsMommyhttps://www.blogger.com/profile/11824487624322035136noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-87208873554674932972010-12-12T22:39:50.288-07:002010-12-12T22:39:50.288-07:00Firstly that is the cutest picture of Jax yet, tha...Firstly that is the cutest picture of Jax yet, that smile wow it's definitely intentional, he's happy and he's showing it. I wonder if having Arina around has had this wonderful effect om Jax, he must be sensing her presence and her devotion to him (as I see from the pictures)!! And yes Hope is what we all have for our kids, if we gave up on that we'd be pretty low on most days. So keep hoping and believeing and the most amazing things can still happen!<br />I enjoyed these pictures so much, such beautiful memories of Arina's first Christmas. She is going to be spoilt rotten and she probbaly doesn't know what's hit her, how her life has changed over night. Lacey your family has changed one childs life forever and all of you are truely blessed for that.Tinahttps://www.blogger.com/profile/15552691097146215450noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-79544011574923079552010-12-12T22:21:58.568-07:002010-12-12T22:21:58.568-07:00I wonder now that he's starting to grab things...I wonder now that he's starting to grab things if he might someday be able to use switches. Those can be used for everything from operating toys to simple communication devices. Another idea would be an eye gaze board of close up photos of his favorite things. You may then be able to tell what he wants by the photo he looks at. I am interested in research of whether using photos on communication boards eliminates the need for symbolic understanding. I know infants will grasp photos as if they are actual objects. Jax is making progress and learning. Whatever his full potential is, he is getting the pleasure of discovering and learning about the world, just as any child would.Anonymoushttps://www.blogger.com/profile/14299493731311058061noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-81069693194880085772010-12-12T21:30:59.901-07:002010-12-12T21:30:59.901-07:00Jaxson, you sure do get loved on by Arina, don'...Jaxson, you sure do get loved on by Arina, don't you! You are such a great big brother to put up with her antics. It looks like she's trying to stick her fingers in your trach!<br /><br />Lacey, I am loving the picture of Jax smiling at Santa. He really is much more alert and active, even Alex mentioned it at Disneyland. It's great! I will cross my fingers and pray that it will continue and continue. :)<br /><br />I wanted to comment, you asked Skye's mom about testing for dysmotility. Emily has had it done. We did a motility study at CHOC. It was a bit messy and rough, but not too bad. They inserted these tubes through her g-tube into her intestines, and up her bum to her bowel. Then they put in liquid and watched to see how it moved and emptied, etc. <br /><br />It showed dysmotility at the time, but it has improved quite a bit now. I wonder if your hospital can do a dysmotility study? Has he had an Upper GI with small bowel follow-through? That would give them some information too about his motility.ANewKindOfPerfecthttps://www.blogger.com/profile/11978293330074662766noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-81879262554228955882010-12-12T20:46:06.281-07:002010-12-12T20:46:06.281-07:00Oh my word! That picture of Jax just made my week!...Oh my word! That picture of Jax just made my week! He looks so much like Tanner in that pic too. Just adorable for both of them. Keep enjoying the moment and hoping for the future!mandd3https://www.blogger.com/profile/12980601924572371748noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-68570883163603998352010-12-12T19:41:31.361-07:002010-12-12T19:41:31.361-07:00Arina's Christmas outfit it too cute! And I l...Arina's Christmas outfit it too cute! And I love the pictures of her mauling, or loving on :), Jax.Melissahttps://www.blogger.com/profile/06474584473012742915noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-17496010648348242722010-12-12T19:10:42.828-07:002010-12-12T19:10:42.828-07:00Oh my - that picture with Jax & Santa is price...Oh my - that picture with Jax & Santa is priceless. Love Arina's outfit, too!!!Kristinhttps://www.blogger.com/profile/11988590894638135312noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-15451456051019272732010-12-12T17:15:51.715-07:002010-12-12T17:15:51.715-07:00Beautiful pictures! I really do believe by look at...Beautiful pictures! I really do believe by look at the pics of Arina and Jax together that they have a special bond. She knows something. Cuties!Sharihttps://www.blogger.com/profile/16656482657146819996noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-2547345496850859862010-12-12T15:53:20.944-07:002010-12-12T15:53:20.944-07:00Love the picture of Jaxson smiling!! Also the pict...Love the picture of Jaxson smiling!! Also the pictures of Arina & Jaxson together. Too cute!Alaina and Kylehttps://www.blogger.com/profile/16414540226285673632noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-54624721304433580742010-12-12T15:32:30.368-07:002010-12-12T15:32:30.368-07:00Hope is what is all about Lacey.Always hope.
The ...Hope is what is all about Lacey.Always hope.<br /><br />The pictures are amazing.Tanner and Carter in their sweater vests,so handsome.Arina looking like the princess she is and then there is Jax ..<br /><br />My sweet guy.That little guy that I love so and that smile,melts my heart.Absolutely melts my heart!Heatherhttps://www.blogger.com/profile/04209967185741239050noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-76214075803155844042010-12-12T15:27:25.579-07:002010-12-12T15:27:25.579-07:00I LOVE the pictures of Jaxson - you are right he d...I LOVE the pictures of Jaxson - you are right he definitely looks so alert at the moment. Looks like you had a great day!Alisonhttps://www.blogger.com/profile/09793960049542281502noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-77059703140466047552010-12-12T15:07:22.115-07:002010-12-12T15:07:22.115-07:00Oh my goodness!! What a fabulous picture of Jax. ...Oh my goodness!! What a fabulous picture of Jax. Love it. Your sweet girl is as darling as ever. Do you think she is helping him want to progress - I don't know if that even makes sense - but I see an incredible bond between my Bella and my Joy and I see it through the pics of Arina and JaxShelly Turpinhttps://www.blogger.com/profile/04950719033017424725noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-4458184383136148172010-12-12T14:35:49.970-07:002010-12-12T14:35:49.970-07:00Oh my goodness, could she be any cuter? That dress...Oh my goodness, could she be any cuter? That dress is adorable and I love the pic of Jax smiling on Santa's lap.Colleenhttps://www.blogger.com/profile/13538192615781547765noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-89683115925732486752010-12-12T14:27:52.405-07:002010-12-12T14:27:52.405-07:00Never mind! I figured it out!Never mind! I figured it out!Erinhttps://www.blogger.com/profile/03826866296753999239noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-1327343950983336092010-12-12T14:26:37.534-07:002010-12-12T14:26:37.534-07:00Oh could they be any cuter???? HOORAY for smiles!...Oh could they be any cuter???? HOORAY for smiles!Aprilhttps://www.blogger.com/profile/09392694404428255821noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-48170401655689639872010-12-12T14:25:36.820-07:002010-12-12T14:25:36.820-07:00What's a Tobi? We will be seeing Day on Monday...What's a Tobi? We will be seeing Day on Monday. Bummer! So close!Erinhttps://www.blogger.com/profile/03826866296753999239noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-29992661795626305572010-12-12T12:03:19.195-07:002010-12-12T12:03:19.195-07:00I LOVE the Jax smile!! Very cute kiddos indeed!I LOVE the Jax smile!! Very cute kiddos indeed!Cammie Heflinhttps://www.blogger.com/profile/07843057037279743749noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-56439788219588338672010-12-12T11:50:31.274-07:002010-12-12T11:50:31.274-07:00I LOVE the pictures! Is Jax maybe doing more beca...I LOVE the pictures! Is Jax maybe doing more because of the stimulation of having Arina around?<br />Anthony has done so well so far, even with his medical issues, and the therapists, doctors, and I are convinced it's because the siblings are so stimulating and loving.Simply, Sarahhttps://www.blogger.com/profile/00854897981549718681noreply@blogger.com