tag:blogger.com,1999:blog-2212485478080287079.post2075908143438578114..comments2023-08-28T03:10:39.279-06:00Comments on Jaxsons Fight: Swimmin babyLaceyhttp://www.blogger.com/profile/03321275110857561824noreply@blogger.comBlogger20125tag:blogger.com,1999:blog-2212485478080287079.post-38255110634498310852009-07-28T00:37:15.470-06:002009-07-28T00:37:15.470-06:00Carter still hasn't warmed up to the idea of s...Carter still hasn't warmed up to the idea of swimming. Loves to take a bath where the water is warm - hates swimming where the water is not warm. Cute picture with Jaxson and his goggles - he is posing so cute!Alan Andersonhttps://www.blogger.com/profile/16203393819140750852noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-24278471707721747362009-07-27T11:09:32.462-06:002009-07-27T11:09:32.462-06:00WOW, Jax looks so HAPPY there in the water! How s...WOW, Jax looks so HAPPY there in the water! How scarry it must be for you when he turns blue like that! I can't even imagine...I'm so sorry Lacey! Thank God you're as educated as you are;) Jax is a lucky boy to have such a wonderful Momma!!!!<br /><br />Glad that Jax had a good day, despite the blueness...<br />Keeping you all in my thoughts & prayers like always...<br />Love ya'll!!!Melissahttps://www.blogger.com/profile/02836918583076227118noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-9981681467032288042009-07-25T22:33:02.638-06:002009-07-25T22:33:02.638-06:00I love that idea you just mentioned on Stephanie&#...I love that idea you just mentioned on Stephanie's blog. I want to do that too!!!Denisehttps://www.blogger.com/profile/00587160152394379314noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-52919731455000398802009-07-25T22:13:08.395-06:002009-07-25T22:13:08.395-06:00Awesome swimming pics.. i'm jealous. We haven&...Awesome swimming pics.. i'm jealous. We haven't been back in the water since my infamous burn incident a couple of weeks ago (which i'm still getting over). I'm so glad you guys had a good day, you deserve it.Stephaniehttps://www.blogger.com/profile/00301913711229811881noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-54872526418956993172009-07-25T16:45:15.121-06:002009-07-25T16:45:15.121-06:00Ahhh love swimming. Jophie used to LOVE swimming. ...Ahhh love swimming. Jophie used to LOVE swimming. So free and able to move all those stiff limbs. He's not allowed with his trach now. Just one of those "ugh I just don't know" sacrafices I had to make. I hated taking that away from him. One of the nurses bought him a Little Tykes sprinkler ball. Can't wait to try that out! :0)<br /><br />On the O's....Not a dumb question girlie. Jophie has an uncuffed trach on purpose. <br /><br />Our Ped. ENT/Surgeon protocol is to place only uncuffed trachs in his baby patients and patients who cognitively are like babies or any child who can not express verbally when something is wrong. It makes perfect sense too. Say Jophie would get a plug in that trach and wouldn't be able to tell me. Say it was in his sleep and I was sleeping as well. Sure the alarms would sound but when? After he wasn't breathing or his heart had stopped. This way IF for some oddball reason that trach would become occluded Jophie could breath "around" it till I figured out what was going on. It also makes it possibe and easier for him to vocalize with his speaking valve. <br /><br />The O's we use when he's outside in the heat or when the weather requires him to breath harder/deeper ect. Jophie still has not mastered(and may never) the ability to consistently vocalize and/or create enough pressure/suction to open the flap on the end of the speaking valve. We do have an oxygen port for the speaking valve BUT, there is no hole/access to the inside of the speaking valve which just seems plain stupid to me. <br /><br />So...for Jophie to actually get ANY of the oxygen from that port he HAS to conistently(every single breath) forceable create enough pressure to open and close that flap. He does it very randomly maybe only 1 to 2 times in an hour which gives him only that little "dab" of oxygen at those times. That is NOT enough for him and he begins to struggle to breath/drops his sat/ you get the picture. <br /><br />We slap the canula on and he gets loads of O's right where it needs to be. With the speaking valve on the trach is covered causing the O's going through his nose to go around his uncuffed trach giving him exactly what he needs...<br /><br />Very long explanation I know..Sorry bout that! <br /><br />I'm so glad Jax got to enjoy a bit of the sunshine and the pool. Here's hoping he manages to get a few more dips before the summer is over! :0)<br /><br />Talk soon!<br />Hugs,<br />Trina and JophieTrina and Jophiehttps://www.blogger.com/profile/14977973502325044495noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-76582365292119402262009-07-25T16:20:24.854-06:002009-07-25T16:20:24.854-06:00great pictures. Jonathon loves the water.great pictures. Jonathon loves the water.Christinehttps://www.blogger.com/profile/16683359522742450137noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-64250590417469314282009-07-25T16:04:36.715-06:002009-07-25T16:04:36.715-06:00Loving the googles! That is just so adorable. He&...Loving the googles! That is just so adorable. He's just chillin' in the water.Kimhttps://www.blogger.com/profile/05464045194591166819noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-79171375870764695172009-07-25T14:49:03.370-06:002009-07-25T14:49:03.370-06:00I love his little tropical swimming trunks. He is...I love his little tropical swimming trunks. He is so cute! I'm going to keep praying for Jax for some good news. BTW, have you heard anything from Boston? I don't think I have seen anything on it. I sure hope someone will take his case. <br /><br />Hope your having a great weekend.<br /><br />Hugs from Carson and I!My Three Sonshttps://www.blogger.com/profile/17538389626222825358noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-53430956800070237852009-07-25T12:54:23.274-06:002009-07-25T12:54:23.274-06:00Awww he looks so calm and relaxed! Kameron has tho...Awww he looks so calm and relaxed! Kameron has those SAME swimming trunks! :)Mommy to those Special Kshttps://www.blogger.com/profile/07321242319840791482noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-33189812166023419422009-07-25T11:47:51.564-06:002009-07-25T11:47:51.564-06:00What an awesome, weightless experience to float in...What an awesome, weightless experience to float in the water. Beautiful boy and great photos. The goggles are too cute!Monica Crumleyhttps://www.blogger.com/profile/11292679754594755040noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-27914711270786575322009-07-25T09:01:01.394-06:002009-07-25T09:01:01.394-06:00I'm glad Jax enjoyed some water time...water i...I'm glad Jax enjoyed some water time...water is so relaxing & theurapuetic...he is so cute in those blue goggles...and I am with Heather, so sweet the way Daddy is looking at him in the water...I get all mushy with Daddy and son/daughter pics anyway...great to have family in town too, I'm sure...The Lehnick Familyhttps://www.blogger.com/profile/01785316812435367173noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-81164667035978482892009-07-25T07:25:59.489-06:002009-07-25T07:25:59.489-06:00What a sweet, sweet boy!!! He looks so peaceful ...What a sweet, sweet boy!!! He looks so peaceful in the water! I'm jealous about that...you know how well Gavin tolerates water! I love the picture of him with the goggles on! So CUTE!!!<br /><br />Praying that he stops having the blue spells! How scary! Poor little man, but what a fighter! HUGS!!!The VW'shttps://www.blogger.com/profile/05116325494368190699noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-4084785170740808442009-07-25T05:48:49.301-06:002009-07-25T05:48:49.301-06:00oh that little boy of yours is doing a number on m...oh that little boy of yours is doing a number on my heart! Just kiss his cheek for me.Stephaniehttps://www.blogger.com/profile/10792117187001612101noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-59569519087783596062009-07-25T05:47:16.085-06:002009-07-25T05:47:16.085-06:00He looks so content in the water with daddy. very ...He looks so content in the water with daddy. very sweet how your hubby has your name tattooed on his chest. too sweet.the magnets should be here in a day or 2Dawnhttps://www.blogger.com/profile/17718287996788385127noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-62809842736922116292009-07-25T02:05:53.533-06:002009-07-25T02:05:53.533-06:00There was something about Ray holding him in the p...There was something about Ray holding him in the pool that made me cry.I know.Weird but there was just something.Remind Ray his arm says LA ... we're expecting him back.Tell Jax to knock off the blue spells .. giving me a an attack myself.Love to you all.Boston called???Heatherhttps://www.blogger.com/profile/04209967185741239050noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-28267172488525214612009-07-24T23:55:47.427-06:002009-07-24T23:55:47.427-06:00We took Max swimming for the first time today - he...We took Max swimming for the first time today - he hated it :) Jax looks like he'd float there all day!Kristinhttps://www.blogger.com/profile/11988590894638135312noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-37663149589074111792009-07-24T23:51:59.445-06:002009-07-24T23:51:59.445-06:00I am so glad he was able to enjoy the pool the sec...I am so glad he was able to enjoy the pool the second time around! He looked like he was loving it! Justin is slowly warming up to swimming. Don't we love extra holidays! Anything for another day off and being together with our families!Emilyhttps://www.blogger.com/profile/05573655586853387634noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-46101158894724201232009-07-24T22:52:48.287-06:002009-07-24T22:52:48.287-06:00Other than that first pic, he totally looks at pea...Other than that first pic, he totally looks at peace in the water. So sweet. Does he actually like to go under water? Ella has not gotten to that point yet. She doesn't like water in her face at all. In answer to your question, the chromosome test can show if there are changes in the chromosomes which I guess tell them if cancer is looming....I don't really understand it completely. So what is the July 24th holiday in Utah???Denisehttps://www.blogger.com/profile/00587160152394379314noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-30892287221518169822009-07-24T22:15:38.377-06:002009-07-24T22:15:38.377-06:00I am so glad he enjoyed the pool! He looks very pe...I am so glad he enjoyed the pool! He looks very peaceful in that pic! What a cutie!Sharihttps://www.blogger.com/profile/04554314908015066118noreply@blogger.comtag:blogger.com,1999:blog-2212485478080287079.post-40370750187423685172009-07-24T21:55:43.406-06:002009-07-24T21:55:43.406-06:00I'm glad he enjoyed the pool. I am very envio...I'm glad he enjoyed the pool. I am very envious - we are mid-winter at present.Alisonhttps://www.blogger.com/profile/09793960049542281502noreply@blogger.com