With 2 days left until we leave for California, they are going to be spent running wild trying to get things ready. This will be our first trip with the trach, and while I thought it wouldn't add much to our load, its proven me wrong!
You know we don't let Jaxsons disabilities stop us from taking our beloved Disneyland trips, or any trips for that matter. You just have to be super prepared. We bought a luggage carrier for the top of our car, and we've quickly run out of space even with that. When we bought our Odyssey last year, we made sure to have a tow-hitch put on in case we needed to get a small trailer, and we may just be there already!
Last year I also bought one thing that has been a lifesaver! A tacklebox. Sounds strange, but I use the two plastic bins to put all the little medical supplies we need, and the rest of the bag holds feeding bags and oxygen tubing.
Two things we've added this year that are going to end up taking up a lot of space are our humidifier...
and the air compressor that runs the humidifier.
The new plan is to get another big suitcase and put them both in there so we don't have to make twelve trips to the car to take stuff up to the hotel.
So all together right now Jax has 4 suitcases of stuff! Not to mention the suction machine and feeding pump....
and pulse oximeter, 7 oxygen tanks and a portable concentrator. Oh and a special needs stroller. Whew, thats a lot of stuff. Keep your fingers crossed it all fits in the car! The more I talk about it the more worried I get it won't all fit!
When Jax was in the hospital a few weeks ago we bought the whole family Lifeflight sweatshirts. They were having their annual sale, and we love to support them. The Lifeflight team has transported Jax before, and since we live 45 mins to an hour away from the hospital, its nice to know they can get him there fast in an emergency! But the smallest size they had was a 4t. Now Jax is 4 but we all know he doesn't even come close to fitting in 4t clothes. But we had to get it. This is what it looks like after I washed it. All you can see are those chicken legs!