Friday, July 31, 2009

The golden ticket.

Happy Friday everyone. Jax was quite bright eyed this morning. We've been depending on our Napnanny a lot more with the airway and fluid issues. When he wakes up in the morning, his eyes almost look normal. His cheeks and chin are still huge, but you can see his eyes. Good morning beautiful!

We are heading back to California in a few weeks. I still don't have definite plans, we're waiting to see if daddy can get more time off. It makes me crazy not to be able to plan, I have to have a plan. We know for sure we are doing Disneyland on the 20th. Why, because we have our golden ticket. The 20th is Tanners birthday so he gets in for free, wahoo, any way to save a buck.

Any of our California friends, we'd love to get together. We know for sure we are going to Zoey's house, our favorite friend. We don't have a lot of time, but email me.

Also, I need all of our DS friends to email me a pic of their kido. It doesn't have to be a profesional pic. I just got a great idea when I saw this pic on Emilia's blog.


It was the sweetest thing I'd ever seen. So I'm buying a pic picture frame with 3x5 spaces, and I'm going to put our friends pics in there with a saying. I was thinking "you think we're different, we think your all the same". If you know something better, please give ideas. My email is laceyrugg@hotmail.com

23 comments:

Anonymous said...

LOVE THE FRAME IDEA!!!!!

Heather said...

Can't wait to see you.Any day is going to work.just let me know.You are so right about his eyes,brighter then they have been .... where the HELL is Boston!!!!I will email a picture today.

The VW's said...

What a wonderful sight to wake up to each morning! What a precious boy! I'm glad that the Napnanny is working well for you!

How exciting, another trip to California! Hope you guys enjoy yourselves! What a fun thing to do on your son's birthday!

I'll e-mail you a picture of Gavin soon! HUGS!!!

Cammie Heflin said...

I love that idea! I may have to copy you! I keep pix from my Beautiful Faces calendars and make collages, I should use kiddos I "know"!!!

Ally in Wonderland said...

I just wanted to stop by and say hi. I found you guys from Rhett's mommy's blog and have added Jaxton to my prayer list. Glad to hear about your exciting upcoming fantastic vacation!!!

Alison said...

Have a great time at Disneyland!

Emily said...

Cute idea! I am so glad you are able to go to California... better yet, Disneyland! FUN! I love his big eyes in those pictures!

Melissa said...

Those are the 2 most precious photo's of Jax I've seen! Look at those cute eyes...he looks great!

I hope you guys have a great time in Disneyland! You certainly derserve it!!

{{HUGS}}

Tausha said...

What a great idea. I am waiting for a professional picture that we had taken last week. I know they don't have to be professional but I want to send one. :-) As soon as I get it I'll email it to you.

Denise said...

I wish we could go do Disneyland. We will probably be broke after our trip. Our kids start school on the 17th so that will be a school day when you go. Depending on when you get together with Zoey, I hope we can make that as I need to see Zoey too. Hopefully it will be a weekend????? See you in a few days, I hope???

Dustin and Kelly said...

Lacey, I came across a quote today that has nothing to do with Down syndrome, but I fell in love with it and feel it totally applies: "The difference between ordinary and extraordinary is the extra". If you would like a pic of Landon, the one I posted today is quite cute. If you click on the picture and view it full size, it should be a good resolution to save and print! If that doesn't work, let me know and I'll email!

Kristin said...

OH - that 2nd picture of Jax is priceless! And that Napnanny looks like it's worth it's weight in gold, too :)

Stephanie said...

You vacation sounds wonderful and deserved.Say hi to Mickey from me, I love that mouse! Jax looks so beautiful in those pics, that first one... you get lost in those eyes. Love him!!!!!

Sophia said...

Sounds Great!!! Jax is so adorable.
(I'm Emilia's big sister.)

{{HUGS}}

Junior said...

such sweet pics of Jax

Evie's Story said...

Have a great time as a family at Disney!! woohoo!

Kim said...

What a neat idea!

Jaxson looks so alert in that picture. What a handsome boy!

MichelleH said...

Oh Lacey....I hope that you hear from Boston soon. I hate to hear that his SVC symptoms seem to be worsening. He is such a beautiful boy...he melts my heart!

Love and hugs!
Michelle

Christine said...

I think Jax looks really good in this picture. I just want to squeeze him. I hope you have fun in Disneyland. Will look thru my pictures for one to send.

Shelly Turpin said...

Disneyland!?!?! Oh I hope it's the break you need. You get to see Heather and Zoey - what fun! I hope this trip can be so wonderful for you, just to recharge. Yeah for the Golden Ticket!

Stephanie said...

Wow those eyes are beautiful!
We'll email a pic for sure, I love the idea.

My Three Sons said...

I haven't been to Cali since 1993. I have been wanting to take the boys before Coltan and Cody are too old to go with mom. LOL

The frame idea is really cool.

Michelle said...

I'm glad the napnanny seems to be working for Jax!

Have fun at Disney - make sure you stop by guest assistance and get the special needs pass; it came in handy when we used it for Kayla!